One size does not fit all: The complex patient with cerebral palsy

Description

Cerebral palsy continues to be the number one childhood disability with varying presentations with each individual. This course will dive into the rehabilitation of complex individuals with cerebral palsy. Each individual may have different abilities and skills and rehabilitation professionals often come across a more complex case that can be challenging to work through. Traditional definition of complex care involves an individual with a diagnosis along with additional medical complications that impact function, care and comfort in a unique way. This course will discuss these patients and move beyond to include those cases that don’t have a straightforward answer. Complex can be the individual who is unable to manage their spasticity impacting function and positioning or an individual who is ambulatory but is not able to manage their dystonia, significantly impacting their function. Rehabilitation management is not straight forward for an individual with a complex presentation. There is often not a direct answer on the best course of action with respects to spasticity management, rehabilitation, equipment and/ or potential orthopedic surgery. The scientific literature for rehabilitation with this population is limited due to the individual nature of their presentation. The team approach will be emphasized as a critical key to working with these individuals and their families to navigate the system of care. This course will dive into important areas of consideration such as 24-hour positioning as well as cutting edge information regarding deep brain stimulation and spasticity management. Learners will participate in group case studies related to ethical dilemmas, challenging parent discussions, surgical outcomes and the clinical reasoning required to recommend specific orthotics. We will then discuss the importance of an individuals psychological well-being and how their complex situation impacts their family dynamic. The clinical decision-making around challenging orthopedic decisions will occur with a final team panel, discussing the importance of communication and teamwork to facilitate better health outcomes.

*These sessions were approved for the following IL EI credits:

Thursday, July 13th, 2023
*KEYNOTE: From Physician to Mother: Changing Perspectives on Disability-0.5 ATY, 0.25 INT
*Complex Movement Disorder Program: A multi-disciplinary approach addressing refractory hypertonia-0.5 ATY, 0.25 INT
*Deep Brain Stimulation for movement disorders-0.5 INT
*Non-invasive neuromodulation to enhance life participation in children with perinatal brain injury.0.5 INT
*Discussion: Neuromodulation for clinical and restorative indications-0.5 INT
*Caring for posture around the clock-1 INT

Small Group Discussions – Pick 2 of 4
1. The Stem Cell “Cure”-1 ATY
2. Navigating Parental Hope-1 WWF
3. To Hinge or Not to Hinge?-1 INT
4. Therapeutic Potential with Complex Patients-1 INT

Friday, July 14th, 2023
*Program Development: Creative Initiatives to Meet Complex Needs-0.75 WWF
*Complementary tools for spasticity management-0.75 INT
*Mental Health: The things we don’t see-0.75 WWF
*Patient Panel-0.5 WWF
*Challenging Orthopedic decisions-0.5 INT
*Challenging Orthopedic decisions-0.5 INT
*Discussion on Orthopedics and therapy implications-0.5 INT
*Case Review: A Team Rehabilitative Perspective-0.75 INT
*Overview and Debrief-0.5 WWF





Location Online

Date 7/13/2023 8:30 AM - 7/14/2023 4:00 PM
Sponsor Shirley Ryan AbilityLab
Trainer Gadi Revivo, Ana-Marie Rojas
Contact Leslie Marriott (312) 238-6832 lmarriott@sralab.org
Principles 1. Support families
2. Active participation
3. Collaborative relationships
5. Comprehensive plans
7. Ongoing communication & collaboration
8. Quality services
Credit Hours 0
Cost Early Bird May 12 $275 $325 thereafter
Status Closed